On May 23, Marina Litvin, MD and colleagues had their work titled “Nutritional considerations for a new era: A CF foundation position paper,” published by the Journal of Cystic Fibrosis.
The nutritional landscape of cystic fibrosis is fast-changing, “due in part to widespread use of cystic fibrosis transmembrane regulator highly effective modulator therapy” and prevalence of over-nutrition in Western society at large.
Litvin and colleagues took part in a multidisciplinary committee, organized by the Cystic Fibrosis Foundation, that sought to develop a white paper with recommendations and to identify gaps in literature offering nutritional advice and considerations to those living with cystic fibrosis. They reviewed input from surveys completed by patients, their caregivers and family, and clinical team members to identify four main areas of interest to the cystic fibrosis community. Additionally, they created four working groups to review available literature on the topics of: Weight Management, Eating Behavior/Food Insecurity, Salt Homeostasis and Pancreatic Enzyme Replacement.
Through these efforts, the authors were able to “summarize current understandings of issues pertaining to the four workgroup topics and provide six key take-aways around cystic fibrosis nutrition in the new era.” This multidisciplinary collaboration, as well as identifying topic areas in need of future research, will help move the field of cystic fibrosis nutrition forward and help to better serve patients.
A. Leonard, J. Bailey, A. Bruce et al., Nutritional considerations for a new era: A CF foundation position paper, Journal of Cystic Fibrosis, https://doi.org/10.1016/j.jcf.2023.05.010