Our Wolfram Syndrome International Registry & Clinical Study is for patients living with Wolfram syndrome and their families and physicians who care for patients with Wolfram syndrome. The registry and clinical study is led by Fumihiko Urano MD, PhD and has it’s own website listed below.
Wolfram syndrome is a rare autosomal recessive genetic disorder characterized by juvenile-onset diabetes, optic nerve atrophy, and neurodegeneration.
Requesting an Appointment
Physicians who see patients with Wolfram syndrome in the US
Physicians who see patients with Wolfram syndrome in other countries
Contact Us
Fumihiko Urano, MD, PhD
Director, Wolfram Syndrome Study and Clinic at BJC
Washington University School of Medicine
Medicine, Division of Endocrinology, Metabolism & Lipid Research
MSC 8127-0021-09
St. Louis, Missouri 63110, USA
Email: urano@wustl.edu
Wolfram Syndrome International Registry & Clinical Study Website
Location
Center for Advanced Medicine
4921 Parkview Place, Suite B
St. Louis, MO 63110
Floor: 13