Our Wolfram Syndrome International Registry & Clinical Study is for patients living with Wolfram syndrome and their families and physicians who care for patients with Wolfram syndrome. The registry and clinical study is led by Fumihiko Urano MD, PhD and has it’s own website listed below.

Wolfram syndrome is a rare autosomal recessive genetic disorder characterized by juvenile-onset diabetes, optic nerve atrophy, and neurodegeneration.

Requesting an Appointment

Physicians who see patients with Wolfram syndrome in the US

Physicians who see patients with Wolfram syndrome in other countries


Contact Us

Fumi Urano, MD, PhD
Fumihiko Urano MD, PhD

Fumihiko Urano, MD, PhD
Washington University School of Medicine
Department of Internal Medicine
Division of Endocrinology, Metabolism & Lipid Research
660 S. Euclid Box 8127
St. Louis, MO USA 63110

Phone: 314-362-8683
Fax: 314-362-8770
Email: urano@wustl.edu

Wolfram Syndrome International Registry & Clinical Study Website