Washington University and BJC Healthcare have been named a Center of Excellence by the National Organization for Rare Disorders (NORD). NORD has established a national network dedicated to improving treatment and care for people with rare diseases.
The program is being led by NORD to promote outstanding treatment for rare disease patients regardless of disease or geography, elevate collaboration, improve standards of care, advance research, and increase awareness about rare diseases in the broader medical and patient communities.
“Our belief is that the Center of Excellence program is the next big stride forward for rare disease treatment and patients – to improve health equity and create critical new connections to resources and specialists across our nation,” said Ed Neilan, Chief Scientific and Medical Officer, NORD.